The Registry was created by the North American Pediatric Craniofacial Collaborative Group to evaluate and establish best practices and improve outcomes in children with craniosynostosis. Other Registry participants include Children’s Hospital of Philadelphia, Boston Children’s Hospital, and Cleveland Clinic.
“This is an important contribution to our efforts in evolving state-of-the-art programming for the Pediatric Craniofacial Center at WVU Medicine Children’s,” Aaron Mason, M.D., pediatric plastic surgeon and director of programming for the Pediatric Craniofacial Center, said. “It is also vitally important for ongoing research in this field at the national level.”
The project’s objective is to create a multi-center registry that captures data associated with the perioperative course and management of children undergoing craniofacial reconstructive surgery. Information captured by the registry include laboratory data, perioperative management and course, surgical technique, and complications. The aggregate multi-institutional data set will be used for benchmarking for national quality improvement efforts.
Pavithra Ranganathan, M.D., WVU Medicine Children’s pediatric anesthesiologist, is the principal investigator. In addition to Dr. Mason, other WVU Medicine Children’s Pediatric Craniofacial Center team members participating include pediatric neurosurgeons Rabia Qaiser, M.D., and Cesar Serrano, M.D., and pediatric anesthesiologist Kyle Ritchie, M.D. The West Virginia Clinical and Translational Science Institute is assisting with registry maintenance.
“We are excited about our inclusion in this endeavor,” Mason said. “Dr. Ranganathan is to be applauded for her efforts in securing our participation.”
WVU Medicine Children’s – currently located on the sixth floor of J.W. Ruby Memorial Hospital, WVU Medicine’s flagship hospital – provides maternal, infant, and pediatric care for West Virginia and the surrounding region, giving care to high-risk mothers, premature infants, and children with life-threatening conditions through adolescence to adulthood. In 2020, WVU Medicine Children’s will move into a new, eight-story tower and three-story ambulatory care center to be attached to Ruby Memorial. For more information, including ways to support the $60-million capital campaign for Children’s new home, visit wvumedicine.org/childrens.