Health Research Center

Behavioral Studies

Current and Recently Completed Projects:

Title:    "Health-Related Quality of Life for Pediatric NF1 Patients"

Agency: Department of Defense

Award #:   NF010064
Dates:       2002 - 2005

PI: Andrew S. Bradlyn, Ph.D
Co-I: Carole V. Harris, Ph.D

Objective: To develop an NF1-specific health-related quality of life questionnaire for children.  This questionnaire will be based on information from patients, parents, teachers, and health care professionals.  This disease-specific measure will improve the ability to understand the impact of NF1 and its treatment, which will be important when planning future treatments for NF1.