Division of Occupational Therapy - OT Connect
Autism in Adolescence and Adulthood
Fact Sheets
Autism is a pervasive developmental disorder characterized by a distinctive pattern of deficits in social dysfunction, communicative deviance, and restrictive and repetitive behaviors and interests. Because Autism is a spectrum disorder the symptoms and other manifestations of autism affect each person differently.
(APA, 1994)
Comorbid Conditions:
- Mental Retardation – MR is the most common problem seen with autism. It has been estimated that 75 to 80 % of people with autism are mentally retarded to some extent. However, over 10 % of people with autism have an average or above average IQ. A few show exceptional intelligence (autistic savant).
- Seizures - Beginning either in early childhood or adolescence, nearly 1/3 of the children with autism suffer from seizures, ranging from a brief loss of consciousness to full body convulsions.
- Tuberous Sclerosis - A rare genetic condition, TS causes abnormal tissue growth in the brain and problems in other organs. About a fourth of those affected are also autistic.
- Fragile X - Fragile X has been found in about 10 % of people with autism, mainly afflicting males. People inheriting this faulty chromosome are more likely to have mental retardation along with unusual physical features that are not typical of autism.
Several mental disorders including ADHD, psychoses, depressive disorders, obsessive-compulsive disorder, and other anxiety disorders often occur with autism due to a common underlying problem in brain functioning (NIMH,1997).
Common Symptoms/Course of disease
- Impairment in physical, social, and learning skills
- Immature rhythms of speech, limited understanding of ideas, and use of words without attaching the usual meaning to them
- Difficulty establishing and maintaining relationships with others
- Abnormal responses to sensation
- Problems adjusting to change
- Behavior problems such as aggression, self-injury, rocking, spinning, and hand-flapping
- Problems with planning and performing tasks (AOTA, 2001; Florey, 1998)
Age of onset: Symptoms of autism typically appear during the first three years of life. However, autism cannot be “outgrown” and the progression from childhood to adulthood is an intensive and complex course resulting in diverse aspects of life needing attention. However, the ability to learn and develop new skills is within every individual. Although many remain severely disabled, roughly 1/3 of persons with autism are able to attain some level of personal and occupational independence. Early identification of individuals with autism is a positive prognostic factor for their future development. Other important predictors of adult outcome are communication skills and level of intelligence. The availability of vocational and residential community resources are also influential factors. (APA, 1994; Cohen, S., 1998; Florey, 1998; Huebner, R., 2001; Moshlem, 2004; NIMH, 1997; Paradox, P., 2001; Paris, B., 2000; Sarracino, Dell, & Milchick, 200).
Sexual Bias: Autism is four times more prevalent in boys than girls. It occurs in families of all racial, ethnic, and social backgrounds. Family income, lifestyle, and educational levels do not affect the chance of autism's occurrence ( American Psychiatry Association, 1994; Paris, B., 2000; Huebner, R., 2001, Paradox, P., 2001; Cohen, S., 1998).
Cultural Bias: Although there is no known cultural or ethnical bias for autism, research is currently investigating the possibility of a genetic base for the disorder (American Psychiatry Association, 1994; Paris, B., 2000; Huebner, R. ,2001; Paradox, P. ,2001; Cohen, S., 1998).
Current Medical Treatment: To date, there are no medical tests like x-rays or blood tests that detect autism. The disorder affects each person differently and symptoms change with age. Therefore, periodic reevaluations are necessary to respond to changing needs (NIMH, 1997).
Antidepressant medications such as clomipramine and fluoxetine. Antipsychotics, such as Haloperidol, help to control the aggressive behaviors. Antiepileptics help to stabilize brain activity and therefore control seizures and assist in the control of the aggressive behaviors. Depakote and Tegretol are just two examples of this class of medication. Vitamin B6, taken with magnesium to stimulate brain activity.
Behavior Therapy (NIMH, 1997)
Autism Transfer Factor is an alternative treatment being developed as a “cure for autism." Leukocytes or lymphocytes from human blood cells are taken from a family member in order to transfer immunity to autism.
( http://autism.about.com/cs/transferfactor/a/transferfactor.htm).
Occupational Therapy Involvement
Occupational Therapy (OT) is prescribed to help the individual become as independent as possible.
OT Evaluation: Assessing the adult with autism will reveal strengths and weak areas that may need to be addressed to improve the individuals functioning and level of independence. Two possible evaluation tools are the:
- Assessment of Motor and Process Skills (AMPS) - evaluates a client’s functional ability while completing familiar activities of daily living (ADLs) (Thomson, 1999).
- Kohlman Evaluation of Living Skills (KELS) - designed to assess basic living skills in these areas: self-care, money management, safety and health, transportation and telephone, and work and leisure ( Unsworth, 1999).
Assessments such as the AMPS and KELS help to guide OTs develop goals and treatment plans that are customized to address the needs of the client. Areas of intervention may include developing skills in housekeeping, self-care tasks, clothing care, shopping, money management, communication, telephone use, and leisure activities.
Social dysfunction is one of the significant features of autism and is apparent in difficulties in give-and-take social interaction and the ability to form and maintain relationships. Also making sense of nonverbal communication and subtle social situations continue to be problematic for people with autism. Using group therapy, clients may improve and expand their social interaction skills, learn to recognize other's feelings in addition to their own, and build coping abilities (Sarracino, Dell, & Milchick, 2001). Sensory problems, such as tactile defensiveness, and fine and gross motor skills are also problem areas that may need to be addressed by OT.
References
- American Psychiatry Association. (1994). Diagnostic Statistical Manual of Mental Disorders. 4th edition. (pp.70-75). Washington, DC: Author.
- American Occupational Therapy Association (2001). Tips for living: Understanding autism. Retrieved from: http://www.aota.org/featured/area6/links/link02d.asp on January 20,2004
- Cohen, S. (1998). Targeting Autism. Berkley, CA: University of California Press
- Huebner, R. (2001). Autism: A Sensorimotor Approach to Management. Gaithersburg, MD: Aspen Publications
- Florey, L. (1998). Psychosocial dysfunction in childhood and adolescence. In Neistadt, M.E. & Crepeau, E. B. (Eds.), Willard & Spackman’s Occupational Therapy, 9th ed. (pp. 622-635). PA: Lippincott-Raven
- Moshlem, J. (2004). Adults with autism: Meeting the challenges of a multifaceted life. Advance for Occupational Therapists. 20 (1),38
- National Institute of Mental Health. (1997). Autism NIH Publication No. 97-4023. MD: NIMH
- Paradox, P. (2001). Autism. Gale Encyclopedia of Alternative Medicine
- Paris, B. (2000). Exploring the Spectrum of Autism and Pervasive Developmental Disorders. Therapy Skill Builders. (pp. 1-6)
- Sarracino, T., Dell, L. A., & Milchick, S. L. (January 2001). Autism Spectrum Disorders: Integrating Methodologies and Team Efforts OT Practice [online series]. Retrieved January 22, 2004
- Thomson, L. K. (1999). The kohlman evaluation of living skills in Hemphill-Pearson, B. J. (Ed.) Assessments in Occupational Therapy Mental Health, (pp. 231-244). Thorofare: Slack
- Unsworth, C.(1999). Reflections on the process of therapy in cognitive and perceptual dysfunction, In Unsworth, C. (Ed.) Cognitive and Perceptual Dysfunction (pp. 75-123) Philadelphia: F. A. Davis
How OT Makes a Difference: Evidence-Based Practice
Van Bourgondien, Mary E.; Schopler, Eric (1996). Intervention for adults with autism. Journal of Rehabilitation, Jan-Mar 96, Vol. 62 Issue 1, p65, 7p
This article presents information on the major components of the application of the Treatment and Education of Autistic and related Communications Handicapped Children (TEACCH) system, to programs for adolescents and adults with autism. This study considers four primary treatment components - structured teaching, communication training, leisure and social skill development. The authors of this paper report that these four treatment area impact the adaptation of adults in vocational, residential, and recreational settings. Many of the intervention strategies recommended in this paper are interventions in which occupational therapists have specialized training. The establishment of functional routines for daily living and self care, exploration of healthy social and leisure behaviors, and the enhancement of interpersonal interactions are identified as important focii for intervention in adults with autism.
OT Evaluation: Assessing the adult with autism will reveal strengths and weak areas that may need to be addressed to improve the individuals functioning and level of independence. Two possible evaluation tools are the:
- Assessment of Motor and Process Skills (AMPS) - evaluates a client’s functional ability while completing familiar activities of daily living (ADLs) ( Thomson, 1999).
- Kohlman Evaluation of Living Skills (KELS) - designed to assess basic living skills in these areas: self-care, money management, safety and health, transportation and telephone, and work and leisure ( Unsworth, 1999).
Assessments such as the AMPS and KELS help to guide OTs develop goals and treatment plans that are customized to address the needs of the client. Areas of intervention may include developing skills in housekeeping, self-care tasks, clothing care, shopping, money management, communication, telephone use, and leisure activities.
Social dysfunction is one of the significant features of autism and is apparent in difficulties in give-and-take social interaction and the ability to form and maintain relationships. Also making sense of nonverbal communication and subtle social situations continue to be problematic for people with autism. Using group therapy, clients may improve and expand their social interaction skills, learn to recognize other's feelings in addition to their own, and build coping abilities (Sarracino, Dell, & Milchick, 2001). Sensory problems, such as tactile defensiveness, and fine and gross motor skills are also problem areas that may need to be addressed by OT.
Anecdotal Reports
F. was diagnosed as having autism at about 2 1/2 years of age. F. benefited from early intervention and services received while in school. At 22 years of age and having graduated high school F. was having trouble maintaining her apartment and holding down a job due to difficulties with planning and executing daily activities. F said that her occupational therapist taught her different strategies that would help her to maintain her independence. Some of these tactics include developing and following a routine, break tasks down to manageable sections (clean one room instead of four), use checklists as reminders of what needs done, write down and stick to a budget, and rotate clothes in the closet so that the same one aren’t worn all the time. With these techniques F. was more in control of her life and was less anxious. Writing down reminders for herself at work helped her productivity in that area too. After three weeks of skilled OT services F. reported that she was already more successful in tasks of cleaning her apartment or remembering her medication. After two months she had achieved all her goals and was able to return to work full time and be discharged from OT. Books written from the perspective of adults with autism:
- Through the Eyes of Aliens: A Book about Autistic People by Jasmine Lee O'Neill Jessica Kingsley Publishers; 1999
- In the Mind's Eye: Visual Thinkers, Gifted People with Learning Difficulties, Computer Images, and the Ironies of Creativity by Thomas G. West Prometheus Books; 1991
Client Handout
Web Links
- http://www.inlv.demon.nl/
Independent Living on the autistic spectrum: This website is for people with autism, Asperger syndrome or related condition. It is an electronic “support group”. Visitors logon and “talk” to each other about their lives, problems they may be having or just to get advice.
- http://www.geocities.com/growingjoel/
Understanding Autism in Adults: This website, written by a person with autism provides information for anyone who wants to gain a better understanding of autism and its impact on adults.
- http://www.autism-society.org/site/PageServer
The Autism Society of America (ASA) website is comprehensive offering many links to information including; definitions, characteristics, terms, facts, research, resources, recent news, and current events.
- http://www.nimh.nih.gov/publicat/autism.cfm
National Institute of Mental Health (NIMH): Autism website contains a wealth of information about autism. It offers a definition of the disorder and discusses how the disorder is diagnosed. This site does offer some causes that have been proven as well as accompanying diagnoses, medications, and current research.
- http://www.autism.org/contents.html
The Center for the Study of Autism website offers information on related diagnoses in the autistic spectrum, discusses different interventions and includes interviews with professionals working with clients with autism and interviews with adults with autism as well.
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