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Division of Occupational Therapy - OT Connect

Multiple Sclerosis


Fact Sheets

Multiple Sclerosis is a “chronic degenerative disease of the nervous system, the cause of which is unknown” (Encyclopedia, 1994). The myelin sheath (the insulating layer around the nerve fibers in the CNS) is gradually destroyed, causing difficulty for the nervous system to send messages to various parts of the body (Neistadt & Crepeau, 1998).

Common Symptoms/Course of Disease

Primary symptoms (related directly to demyelination):

  • Fatigue
  • Double vision
  • Optic neuritis
  • Motor weakness
  • Ataxia/tremors
  • Unsteady walk/gait
  • Bowel and bladder dysfunction
  • Muscle spasticity and stiffness
  • Difficulty with concentration and attention
  • Speech or swallowing difficulty
  • Difficulty coordinating the muscles of the mouth to speak and/or swallow

Secondary Symptoms (complications from the primary symptoms):

  • Incontinence/constipation
  • Sexual dysfunction
  • Brief loss of vision in one eye, diplopia (double vision), nystagmus (jerky movements of the eyes), or scotoma (remitting blind spots in the visual field(s))
  • “Pins and needles” feeling in one or more limbs
  • Paralysis or weakness in one or more limbs
  • Urinary tract infections
  • Pain

Tertiary Symptoms:

  • Profound social, emotional and vocational changes for the individual.

There are four patterns in which MS may occur:

  • Relapsing-Remitting: This pattern is common in younger individuals with the disease. It is characterized by “attacks” which last 24 hours or more, followed by complete or almost complete improvement.
  • Primary Progressive: This pattern is more common in older individuals and is characterized by a progression of the disease without remissions or with sporadic improvements or plateaus.
  • Secondary Progressive: This is characterized by initial relapses and remissions, but followed by a steady progression of the symptoms (Longe, 2002).
  • Progressive-relapsing: This pattern shows steady progression from onset.

Age of Onset: Usually begins in early adulthood (between 20 and 40 years of age). It is rare for an individual to have symptoms before 16 or after 60 years of age (Longe, 2002).

Sex Bias: Affects females almost twice as much as males (Trombly, 1997).
Cultural Biases: Multiple sclerosis is more prevalent in the United States, Canada, and Northern Europe and is rare in Asians, North and South American Indians, and Eskimos (Longe, 2002).

Current Medical Treatment: Due to the varied course of the disease and symptoms expressed, there is no single test that confirms the diagnosis of multiple sclerosis. Because of this, a detailed medical history, MRI, lumbar puncture or spinal tap, and/or electrical tests of conduction speed in the nerves are the main components of the diagnostic process (Longe, 2002).

There are three main drugs, known as the ABC drugs, which aid in slowing the progression of multiple sclerosis in individuals. Administered by injection, these medications “have been shown to reduce the rate of relapses in the relapsing-remitting form of MS” (Gale). These drugs have not been shown, though, to work well with those “who have reached a steadily progressive stage of MS” (Longe, 2002).

Spasticity, a common symptom of multiple sclerosis, can result in serious physical and medical complications and is often lessened with medications such as baclofen, valium, and botox. Medications are also available to decrease symptoms such as dizziness, seizures, tremors, and fatigue (Longe, 2002).

Aside from occupational therapy, physical therapy is commonly involved with those diagnosed with multiple sclerosis. Physical therapy’s main goals are to strengthen and retrain affected muscles, maintain range of motion in limbs, and teach individuals how to use assistive devices such as canes and walkers (Longe, 2002).

Occupational Therapy Involvement

The ultimate goal of occupational therapy is to help the individual maintain a productive and independent lifestyle.

Common areas of evaluation and assessment include:

  • Functional status – ability to participate in activities of daily living (dressing, bathing, cooking, cleaning, etc….)
  • Sensation
  • Range of motion
  • Muscle tone
  • Functional muscle strength
  • Endurance and fatigue
  • Postural control and balance
  • Skin integrity
  • Activity tolerance
  • Coordination (large and fine motor)
  • Cognitive functioning
  • Emotional status
  • Presence or absence of diplopia (double vision)
  • Mobility
  • Architectural and environmental barriers
    (Trombly, 1997)

Occupational therapy treatment for individuals with multiple sclerosis includes, but is not limited to:

  • Compensatory training and environmental adaptation
  • Adaptive equipment recommendation and instruction
  • Energy conservation and work simplification education
  • Functional mobility training, including transferring to and from a toilet, bed, bathtub, and wheelchair
  • Range of motion exercises and stretches to prevent muscle shortening and joint contractures
  • Wheelchair fitting
  • Support group services and any other psychosocial issues related to the disease
  • Leisure interests
  • Coping skills
  • Home and work modifications
  • architectural and environmental barriers
    (Neistadt & Creapeau, 1998)

References

  • Encyclopedia americana (Vol. 19). (1994). Danbury, CT: Grolier Incorporated.
  • Longe, J. L. (Ed.). (2002). The Gale encyclopedia of medicine (2nd ed., Vol. 3). Detroit: Gale Group.
  • Neistadt, M. E. & Crepeau, E. B. (1998). Occupational therapy (nineth ed.). Philadelphia: Lippincott-Raven Publishers.
  • Trombly, C. A. (Ed.). (1997). Occupational therapy for physical dysfunction (fourth ed.). Philadelphia: Lippincott, Williams, & Wilkins.

How OT Makes a Difference: Evidence-Based Practice

Baker, N.A., & Tickle-Degnen, L. (2001). The effectiveness of physical, psychological, and functional interventions in treating clients with multiple sclerosis: A meta-analysis. American Journal of Occupational Therapy, 55, 324-331.

Since evidenced-based practice is becoming extremely important in validating the effectiveness of occupational therapy, a meta-analysis (comparison of research articles on a similar subject) was performed to determine the impact of occupational therapy treatment on individuals with Multiple Sclerosis (MS). Twenty-three published articles that primarily focused on occupational therapy-related interventions for MS were analyzed, with the results offering promising information for occupational therapy practitioners. An overall finding from the studies found that only 24 percent of individuals with MS had improvements without occupational therapy, while 76 percent indicated positive results with therapy. Also, results of several studies suggested the effectiveness of occupational therapy in individuals with MS who had at least moderate levels of impairment, and others suggested that brief intensive therapy in an inpatient setting improved performance. Limiting factors and future implications of this meta-analysis include a need for a control group “that controls for the attention received by participants in a rehabilitation program” and “measurement of outcomes at the life roles level.” (p. 330).

Anecdotal Reports

D.G. was diagnosed with Multiple Sclerosis in his early to mid twenties. “When I found out from the neurologist, it was as if my life had come to a complete halt” he expressed to me. Now, in his mid-thirties, he looks at life with a completely different perspective, takes every day one day at a time, and says for that he has his occupational therapists to thank.

When I met D.G., he was at a local inpatient rehabilitation center due to a recent MS exacerbation. Though he has been at this facility roughly six to eight times since first being diagnosed, he said he goes home physically, mentally, and emotionally stronger every single time. “When I go to physical therapy they strengthen my muscles, but when I go to occupational therapy they strengthen my mind, as well,” he stated. D.G. explained to me that when he is working with his occupational therapist or occupational therapy assistant (varies each time according to caseload), it is as if he is constantly receiving positive feedback that is outweighing all the negative aspects of his disease. He stated, “The first time I came here to receive occupational therapy, I had no idea what I was in for. By the time I went home, though, I looked in the mirror and saw a clean, well-groomed young man, and that made me the happiest I had been in a long time.” D.G. said that he no longer had to worry about how he was going to get through life, how he was going to cook himself a simple meal or even dress himself in the morning. “I had rolled down a mountain, but with the help of my occupational therapist, I’ve climbed back up, and now I’m back on top,” he declared with a smile.

I asked D.G. what advise he would give to someone that was about to receive occupational therapy, and he adamantly stated, “If you let yourself get past the stubbornness, learn to accept help, and have faith, occupational therapy will open up doors and opportunities you never thought possible.” He continued, “Occupational therapy planted a small seed in my garden, and now that seed has grown into a beautiful, lively tree that will live for years to come.“ Now that’s what I call making a difference.

Client Handout

Web Links

  • All About Multiple Sclerosis
    http://www.mult-sclerosis.org/
    This is an extremely informative site on MS. It includes links to an abundance of information on the diagnosis, including common symptoms and treatments, and also includes several individuals’ stories of their personal experiences with MS.
  • Multiple Sclerosis International Federation
    http://www.msif.org/language_choice.html
    This site can be viewed in one of four languages (English, French, Spanish, and Dutch) and includes information on the latest research and publications on MS, “Quick Facts” about MS, and the impacts MS can have on one’s family, friends, and work.
  • National Multiple Sclerosis Society
    http://www.nmss.org
    This web page includes information on special events concerning MS, such as the MS Bike Tour and MS Walk, listings of videos and publications about MS, and information on the various treatments and therapies involved with MS, including occupational therapy. This site also includes a “For Professionals” section, which provides information on new drugs and treatments, continuing education courses, and the latest research on MS. This same information is available in Spanish.